Friday, January 4, 2013

RSV

RSV - three little letters that when put together cause fear for any micro preemie parent post NICU discharge.  Last RSV season, we were diligent in our efforts to protect Veronica from the potentially fatal virus.  We kept her home as much as possible.  No Mass on Sundays, no outings to the mall, we skipped our annual Christmas photo and she and I even missed a family gathering for our nephew's confirmation.  We were so diligent about hand washing, not only for ourselves but for any others who entered our home.  And the monthly, rather painful, synagis shots were an added level of security.  Not to mention the fact that she was still primarily breastfed during those months, something I know played an important factor in keeping her relatively healthy.

This year has been different.  Because of Veronica's health, she didn't qualify for a second season of  synagis shots.  Our hand washing is nowhere near what it was like last year.  And these days we try to get out as much as possible - Costco trips, Mass on Sundays, frequent playdates.  Now we have paid the price.  Last evening, after a swab to test for RSV and a chest x-ray, Veronica was diagnosed with RSV pneumonia.  We are fortunate to have avoided a hospital visit and I am hopeful the worst is behind us at this point.  But my heart dropped when the nurse told me the RSV test was positive.  I think we may have taken her health for granted, and for that I do feel terribly guilty.  We'll go back to the doctor today for a follow visit and continue with round the clock nebulizer treatments and ibuprofen.  Please say some prayers that our little girl gets well soon.



7 comments:

  1. Aw, sweet girl!! We have been MUCH less cautious this year too. They are older and so much more active it would be nearly impossible for us to stay inside all day every day. Get better soon, Veronica!

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  2. she's so cute! nebulizer and all. get well soon. and you brush that guilt away - you have 4 children going to school and bringing home every germ imaginable and veronica has been so healthy up until this moment. she will conquer this as she has conquered every other hurdle thrown in her way. try to take joy and comfort in your round the clock nebs - it's some cuddle time you wouldn't otherwise get :)
    -genevieve

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  3. I am SO SO sorry you are having to deal with this! Now saying this I must also say, these pictures are EXACTLY what I needed to see today. Ella originally did not qualify for synagis this year either, so I did an appeal (her lungs are still pretty iffy) and we were granted the second year. Today was round 2 for the season and it was so emotionally scarring (for both of us) that the reason I am up at almost 3 am is I was trying to decided whether or not to continue the season. I now have confirmation to what I already know and that is...she still needs them.
    Thanks and Prayers for her to get better quick!
    Laura and Ella

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  4. Im so sorry Marcie! We will be praying for your sweet Veronica. I hope your big and strong girl recovers quickly, but I know how scary those dreaded 3 letters can be. Be gentle on yourself, the older these babies get the harder the precautions are. I can't even imagine how tough it is with a family of 7! hugs!

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  5. Look at those sweet little eyes! I just saw this so it has been a few days. I pray she is feeling better. Don't beat yourself up. She is a trouper and so are you!

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  6. So scary! I hope she get's to feeling better soon! Bless her little heart!

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  7. so sorry!!! RSV is the worse, I hope she recovers quickly. Remember there is only so much you can do, and with older kids, isolation is almost impossible!

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