Tuesday, April 17, 2012

Bed Rest - April 17, 2011

One year ago today, I was on my sixth day of hospital bed rest.  I was actually feeling rather well and fairly confident that we had at least a few more days, if not weeks, before the baby would be born.  As much as I would have preferred to be at home, living my life, I knew that wasn't an option.  I had accepted the fact that there was no alternative and tried to make the best of it.  I'll even admit, there were a few moments when I actually enjoyed the quiet - I could read, use the computer, watch a movie - without any interruptions. With five kids at home, it was nearly impossible to do anything uninterrupted. 

The narrative below is from an email I sent to our family members that morning giving them an update.  I had no idea Veronica would be born less than 20 hours later.

Hello all,

Just wanted to give an update on where we stand.  I'm still at the hospital but I feel remarkably well, minus the usual pregnancy complaints.  My vital signs are monitored every few hours and the baby's heart rate is monitored twice a day.  I've been on antibiotics since I got here as presumably the cause of all of this was some sort of infection in my uterus.  And since my water has broken, we're at much higher risk for infection. 

We're basically in a situation where we are just watching, waiting and praying.  As soon as it appears that I am in labor or an infection is brewing, the plan will be for the baby to be delivered, most likely via c-section.  I am currently 24 weeks and 3 days.  The next milestone we are aiming for is 28 weeks (May 12) and then 32 weeks (June 9).  My doctor said that if I happen to make it to 34 weeks, which would be miraculous, they would have to deliver at that time, since the risks for keeping the baby in would outweigh the risks of delivering 6 weeks early.  So given our current situation, the ideal is that we have the baby in June.

Once the baby is born, he/she will be immediately taken to the NICU where he will stay until he can breath well, maintain his heartbeat without oxygen, maintain a normal temperature and feed well by mouth.  We are expecting that this will be until baby is considered term, which would be in early August - so there will be a lot going back and forth to and from the hospital.  The NICU staff have been checking in with us and I took a brief tour of the NICU yesterday.  This is all obviously unfamiliar territory but I am confident that this baby will receive the highest level of care. 

Andrew has been amazing holding down the fort at home.  The offers of support have been unending and will certainly assist us in the months ahead.   The kids have been troopers as well.  I'm hanging in there and keeping myself occupied with my laptop, books, movies, etc.  Andrew brought the kids in on Thursday and will be bringing them again today.  The visits are short given our space constraints but they certainly brighten my day.

Thanks for all of the prayers and support!

Love,
 Marcie

Sadly, I think these are my only photos of me pregnant with Veronica.

Here I am reading one of the many dozen cards I received  from the students of St. Patrick's.   

Thursday, April 12, 2012

Preterm Labor - April 12, 2011

One year ago today was when it all started.  On April 12, 2011, I was admitted to the George Washington University Hospital in preterm labor.  My membranes had ruptured prematurely (PRROM), I was contracting and was already several centimeters dilated.  I was only 23 weeks pregnant at the time.   That day was one of the scariest days of my life.  The night before while I was working my usual shift (3:00pm - 1:30am), I wasn’t feeling well.  One minute I was a sweating, the next minute I was freezing.  I had one of the nurses at my office check my temperature but it was normal.  I just didn't feel right and I couldn't really figure out what was going on.  I called a 24 hour obstetrics line through my health insurance company and spoke with a nurse.  She told me to drink fluids and get lots of rest.  The nurse suggested that I might be coming down with something.  But something to me just didn’t seem right.
I went to bed that night around 2:00am, completely exhausted and still not feeling quite right.  Two hours later, I woke up when I felt something leaking.  I was so tired at that point that it didn’t really occur to me that it was amniotic fluid.  I changed my clothes and immediately went back to bed.  I woke up again around 6:00am, feeling even worse.  I took my temperature and found that it was over 100 degrees.  Shortly after that, I began having contractions.  I finally called my OB’s office but it took about 20 – 30 minutes for a call back.  When I described what was happening, I was told that I should come in to the hospital.  In the meantime, Andrew was getting ready to leave for work with our two oldest children.  I called our good friend Maria who graciously agreed to come to our house to watch our three youngest. 
When Maria arrived, I began my trip into DC to the hospital.  It was pouring rain and the middle of rush hour - a very bad combination in the DC Metropolitan area.  Normally the drive to the hospital would take about 30 minutes, but on this day it took twice as long.  During the drive, my contractions became stronger and more frequent.  And the majority of the drive was on a road with no shoulder.   So there I was, driving my car in bumper to bumper traffic, in labor and virtually no place to pull over.  It was horrible and terribly frightening.  I contemplated calling 911 but then I thought to myself, I'm having contractions but I'm not having the baby, not today.  After all, I was only 23 weeks pregnant.   
When I arrived at the hospital, I got out of the car and handed my car keys to the valet attendant.  A moment after that, there was a gush of fluid and I knew immediately that my water had broken.   As I walked into the hospital, crying and scared, a security guard smiled at me and excitedly said “It’s time? Go right on up!”   I remember sobbing on the elevator which was full of people and a woman patting me on the back and asking if I was okay.     
When I arrived to the labor and delivery section of the hospital, I called Andrew in tears to tell him my water had broken and then was immediately taken to a delivery room.  I asked the nurse what would happen next since my water had broken, she replied by telling me that I would have to let the doctors answer that question.  Minutes later a doctor came in and I had an ultrasound which confirmed that there was very little amniotic fluid left.  I was hooked up to an IV and eventually given medication to stop the contractions.  I was also given a steroid shot to help mature the baby’s lungs.   The OB told me that a neonatologist would come and talk to me about delivering a baby at 23 weeks.  When the nurse heard this, she suggested to me that I really listen to what the doctor said so that I would know what our options were.  I replied by telling her that I am Catholic and that we didn’t have any options.  She clarified and said we might just want to let nature take its course and hold our baby instead of utilizing medical intervention.   An anesthesiologist came and spoke with me in the event that delivery was imminent and I signed the consent form for a c-section.  Andrew arrived at some point during this time.   When we spoke with the NICU fellow, she gave us the statistics and the possible outcomes for a 23 weeker.  The outcomes were grim, as 24 weeks is usually considered the age of viability.  I remember hearing that if our baby lived, he/she could be blind, deaf, have cerebral palsy or other significant impairments.  The doctor said that at some point we would need to make a decision about whether or not we would want them to resuscitate our baby.   We were told that if the baby weighed more than 500 grams, his or her chances of survival would be much higher.  We had an ultrasound where they estimated the baby to weigh just over 500 grams.  For us, there was never a question.  If Veronica had been born that day, she would have been resuscitated.  But who knows what her outcome would have been.


 I spent the night in labor and delivery but was moved to an ante-partum room the following day.  At that point, we no longer felt that the birth was imminent.  It was time to start the waiting game.    Our initial goal was to make it to 24 weeks, which at that point, was only two days away.  After that, we would aim for 28 weeks and then 32.  We knew that every day, every extra hour was a blessing.   I started doing some research on micro preemies.   But I am not sure I could have fully prepared myself for what lay ahead. 

Wednesday, April 11, 2012

Easter 2012


Easter was the first day we went to Sunday Mass together as a family - all eight of us.  It was so nice to finally be able to do this, and without much worry since we are at the end of RSV season.  When we were there, I couldn't help but reflect on how far we had come since last Easter.  Last Easter Sunday, Veronica was on her 6th day of life.  She had developed an infection which prompted the doctor to contact us in the middle of the night.  It was a difficult day to say the lease and I really had no interest in celebrating.  Looking back now, I think how very blessed we are that she survived, knowing that it all could have turned out so differently.  So this Easter felt even more special in a way.  It was a wonderful celebration.  Happy Easter!!  



Confession - this photo was taken a few weeks before Easter but it was so cute, I had to post!

Thursday, April 5, 2012

We Have a Roller!

Veronica is finally rolling on a more consistent basis now.  She's been doing so for a little while now but I just haven't taken the time to update the blog.  And I could never see, to get it on video.  The funny thing is, after all of these months of trying to get her to roll, now that she actually does it, she makes it look so easy.  Next we need her to roll from her back to her belly.  The occupational therapist still comes once a month but this month she will bring along a physical therapist to assess how Veronica is doing from a PT's standpoint. 

In other Veronica news, she has been dealing with a horrible cough and significant congestion for the last week and a half.  I took her to the doctor last week where she was swabbed for RSV, which thankfully  turned out to be negative.  We were given another prescription for albuterol (which she was given in the fall when she had bronchiolitis) along with pulmicort which is a steroid that is supposed to decrease inflammation in the lungs.  Since then we have been giving her nebulizer treatments around the clock.  Needless to say, our sleep has been quite disrupted.  Hopefully we are nearing the end.  It hasn't been fun for any of us.  Veronica has been a champ though and has maintained her happy disposition. 

By the way, at her doctor's visit last week she weighed in at 18 lbs, 10 oz.  19 lbs, here we come!   






Tuesday, March 20, 2012

Cherry Blossoms

This morning, half the members of our family took a trip into D.C. to see the beautiful cherry blossoms  which are in full bloom.  Unfortunately, the other half of our family had to go to school and work (sorry guys!).   So Sebastian, Josephine, Veronica and I headed into the city on our own and had a great morning.  With spring here and the weather being as warm as it's been, we've been taking Veronica out more, which has been good for all of us.  And I no longer worry as much about RSV which feels liberating in a way.   It's almost as though I forget she was born 16 weeks early....almost, but not quite.  

Sebastian - happy to get his photo taken.

Josephine - no interest in getting her photo taken.

With a little encouragement (o.k., a LOT of encouragement), Josephine finally agreed to a photo.

A picnic by the Tidal Basin.

The food definitely put Josephine in a better mood. 

Beautiful!

I took this before I read the sign posted which said not to climb on the trees.  Whoops!


What's a trip to the nation's capitol without a visit to the GW NICU?   This was the highlight of my day!
Don't their smiles speak volumes?  

Poor Josephine fell in the mud right after we left the hospital.  She was so cute I just had to take a picture!


Friday, March 16, 2012

Happy Birthday, Andrew!


Yesterday was Andrew's birthday.  We celebrated by going out to dinner at one of our favorite DC restaurants - all eight of us.  Afterwards, we took the kids to a nearby playground and enjoyed the record temperature.  It was so great getting out and just being together.   As RSV season is nearing the end, we have been going out more and it has been fabulous.

Andrew is an amazing father and I feel so blessed to have him as my husband.  For those of you who don't know, I work at night.  This means that Andrew is responsible for making sure homework gets done, dinner is on the table, table is cleared, kids are bathed, stories are read, teeth are brushed and prayers are said - times six!  In the morning, I get to sleep in while Andrew ensures that the oldest three get ready for school while he packs their lunches.  He is usually up by 5:30am as we have some early risers in our house.  He does all of this without complaint.  What a guy!  Thank you, Andrew!

Theodore, Andrew, Josephine

Veronica (trying her first nacho chip) and Liesl

Linus and Theodore

Me and Sebastian

Andrew can always make her smile!

I love her toothless grin!

Andrew is wondering what it would be like to only have one child :)


The birthday cake - chocolate torte with rasberries and almonds


Liesl designed this t-shirt for her father - the front.....

...and the back


Saturday, March 10, 2012

Some Firsts and a Last

This week Veronica finally discovered she has feet.  I'm hoping she will realize that she can use them to help herself rolll.  But if not, that's ok.  Oh, please take note of her chubby thighs.  We're quite proud of those :)  


She also went on an outdoor swing for the first time and loved it.  All smiles and giggles!


Veronica had her last synagis shot this week and weighed in at a whopping 18 lbs!  Wow!  As much as I won't miss her getting those monthly shots, I will miss the monthly weight checks.  Even though I know she is growing and thriving, it is still so reassuring to actually see the growth in numbers.  She won't be seen again until her 1-year-old appointment which is in less than 6 weeks.  I can't believe we are getting that close.  It's  hard to believe that it will be a year since the day she was born.  I look forward to that day and I know it will be a day to celebrate, but it's sure to be an emotional one as well.