For some time now, we have been following the story of John Paul, the 5th child born to a family we know from our parish. John Paul was a full term baby but he was admitted to the NICU shortly after his birth in early December. A few days later, he was transferred to Children's National Medical Center in DC where he was eventually diagnosed with Spinal Muscular Atrophy, a rare and very serious disease. John Paul has endured two surgeries, one for the placement of a g-tube (to include a nissen), and the other, for the placement of a tracheostomy. Needless to say, the past few months have been challenging for John Paul's family. We were thrilled to learn that John Paul was discharged home on Valentine's Day but saddened to find out the following day that he was readmitted as a result of irritation in his trach which caused some difficulties with his breathing. His parents are hopeful that he will be discharged within the next few days.
With all of John Paul's challenges, his parent's strength and faith has been amazing. The family has created a CaringBridge website to keep people informed of John Paul's progress. If you would like to be inspired, please take a look.
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